Lilly had both her Physical Therapist and her Home Nurse visits today, both of whih went well. She is taking more food by mouth and can hold her own bottle most of the time! Her O2 stats were 92 this morning and is starting to gain more weight!! I think the reason she is sleeping better is because she IS taking more by mouth and is feeling full.
Tomorrow we are going to get family pictures done, a big moment ib this family because after a long 7 months she is good to go out in public!! I am getting a CD so I can update pics sooner!!
I am still blessed!
A SPECIAL PRAYER PLEASE SEND TO ELIZABETH POTTER, anoth Hypoplast baby girl! AND HER FAMILY WHO IS HAVING A HARD ROAD AND IS GOING TO NEED A HEART TRANSPLANT!!!!
follow her @ this link http://www.elizabethbrianne.com/
Please continue to pray for our all families in Milwaukee, and to them knw our hearts are there with you!
We set up this blog to update about Lillyann's struggles and triumphs with Hypoplastic Left Heart Syndrome. Born March 24, 2009 ~ 1st heart surgery (Norwood) April 1, 2009 ~ 2nd heart surgery (Glenn) July 10, 2009~ G-tube placement September 22, 2009 ... 3rd heart surgey (Fontan) Sept. 11, 2012.
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