I can't believe it has been so long since I have posted. Well no news is good news with Lillyann. We went through the winter with no major illnesses. Lilly had her appointment with Dr. Dietz (her Cardiologist) on March 9th. She said that Lilly is doing amazing except for her weight, what else is new! With two weeks before her third birthday Lilly was still at 22 lbs. She gave us until March 28th, the kids' yearly check up, to get her weight up. Otherwise we would need to put the G-tube back in. With "super pediasure" (pediasure/carnation instant breakfast/chocolate syrup) We were able to get her up to 23lbs 6 oz.
We go back to do an Echo on May 9th in Eau Claire I will let everyone know how it goes. Right now we are pushing the Fontan back as far as possible to let her get bigger.
We set up this blog to update about Lillyann's struggles and triumphs with Hypoplastic Left Heart Syndrome. Born March 24, 2009 ~ 1st heart surgery (Norwood) April 1, 2009 ~ 2nd heart surgery (Glenn) July 10, 2009~ G-tube placement September 22, 2009 ... 3rd heart surgey (Fontan) Sept. 11, 2012.
