Great Post Op Appointment!

Even though our Post Op appointment was suppose to be in December, we went to Marshfield yesterday to see how Lilly was doing. We had to wait there all day because of some surgeries that tied up our Cardiologist but it was worth it!

Her Echo was "beautiful" in the words of Dr. Dietz. Lilly had developed a cough due to her Lisinopril (which is common in older adults on heart medicine.) We had planned to switch her medicine to another 'type' to eliminate this. However, after looking at Lilly's Echo, Dr. Dietz decided that she does not need it at this time. Let me tell you, I think my heart stopped! I took her doctor in my arms and embraced her. For those words, for a heart family, are words that we never hear.

She also is going to be taking off one medication every few weeks. So... in about four months Lilly will be off all of her medications! This is a miracle as we knew that medications were going to be a major thing in her life that she would be on them forever. I guess Lilly had other plans!

Our daughter has always been a person who saw herself as amazing, always changing her own body to make up for her heart disease. Although this made for interesting surgeries, God and Lilly had a plan.

Although I know that this change will more than likely be a temporary thing, I am loving this moment, knowing that my daughter has beaten all odds throughout her life and is a wonderful person, A real gift from God (not that all kids aren't).

My new prayer is for our heart friends, that they may, at one point, have a doctor that looks them in the eyes to tell them that their child will have the chance to be a normal kid, without needing medication. It is an amazing thing, and I don't mean to brag or make anyone feel bad, I just never thought this day would come and with my strong girl and God we have accomplished a feeling that I wish everyone could feel.

Many prayers to you all and I can truly say that everything will be okay!