Hi Everyone! Sorry it has been so long... no news is always good news in a heart family! Paul found out last week that he can be off all of his heart meds, but needs to keep some cumidin on him for those "just in case" situations. Being Paul he thinks that his scar is a "battle scar" and trys to make everyone laugh about it.
Lilly went to see Dr Dietz May 15th and she decided that for one, Lilly is just small and always will be, no matter how much calories we stuff her with. She also decided that Lilly was ready for the Fontan. Just hearing that word brings tears to my eyes. The stress and hurt that we have been blessed to be away from for two years is now back. We have decided to wait until this fall to give Lilly the summer she so much deserves. CHW has been in touch but nothing is on the books at this time.
Paul is having a hard time with this surgery, as he has just done this in January. Now he knows how strong our girl is, how much she has accomplished. But slowly he is realizing that this WILL happen no matter what.
Dylan is out of school and wow! I think the year went way too quick! I am back to being a stay-at-home mom because the kids need me....or wait, maybe I needed them. Anyway, I am home. I have started college at home for Psychology online and loving every minute.
Please keep all of our heart families in your prayers as Caden is now home where he belongs. This is a tough journey but we take it one blessing at a time.
We set up this blog to update about Lillyann's struggles and triumphs with Hypoplastic Left Heart Syndrome. Born March 24, 2009 ~ 1st heart surgery (Norwood) April 1, 2009 ~ 2nd heart surgery (Glenn) July 10, 2009~ G-tube placement September 22, 2009 ... 3rd heart surgey (Fontan) Sept. 11, 2012.
