It has been a busy month and looking back I can't believe that May is over already. Since Lilly's GI surgery she has been doing wonderful! I have not heard one complaint about her tummy hurting anymore and the site is completely healed. I thought that she was active before.... gosh has she been moving now.
Since the last update we and pretty much graduated from the birth-2-three program. They will just be visiting once every three months to ensure that she continues to move forward. It is a bittersweet moment when you get so close to therapists and then they just go away. You are so happy to not need the help anymore and then again it is like a friend that moves away.
Lilly and Dylan have both been enjoying the spring/summer weather. Memorial day actually kicked off our first camping trip that Lilly has ever had. We stayed local (only about 10 miles from home) just to make sure that the kids could handle it. We went to a campground and parked ourselves close to the playground so they could play and we could sit back and watch. Paul and I spent to majority of the weekend fishing for, what I now found out were Mud Guppies.
Dylan will be starting a pre-4K program in a couple weeks. The school provides this to allow children to get a taste of what the actual school life will be like. The class will only be 4 days and three hours long (just as long as school will be). He is so excited!
I will be getting a full time job before long and the kids will be going to daycare for the day. I think that it will be good for both of them to develop social skills with kids their own ages. I guess we will see how it goes!
Thank you for all of your support and prayers.
We set up this blog to update about Lillyann's struggles and triumphs with Hypoplastic Left Heart Syndrome. Born March 24, 2009 ~ 1st heart surgery (Norwood) April 1, 2009 ~ 2nd heart surgery (Glenn) July 10, 2009~ G-tube placement September 22, 2009 ... 3rd heart surgey (Fontan) Sept. 11, 2012.
