First steps!

It is amazing how seasons fly by and how fast kids grow! Yesterday night, after I had gotten home from work, Lilly stood up in the center of the Living room and took a step. As she was taking that step, she started to loose her balance and took two more quick steps before falling over!

 Cardiologist appointments are going good as well as GI appointments. We are starting to wean Lilly off of her Metroclopromide (appetite medication) and see how she does. One dose per week is what they told us to do; so far so good. Dr. Fish, her GI doc, is thinking by our appointment in October, we may need to move up a size on her G-tube. Dr. Dietz, her cardiologist, keeps reassuring us to let her be a kid! Not to worry about her weight and know that she is not far behind normal kids her age.

We took the kids to the Lake for the first time this summer. Dylan is far braver than we give him credit for....he was walking out to the deep end and I kept yelling at him not to go any farther, but he is 3 and a boy... he kept right on going out to his neck before he stopped! Lilly is just as brave. Trying to crawl in chest deep water and eating as much sand as she could before we could stop her, just wasn't working all that great! They were both mad when we had to leave.

We have been working on our "new" house and will be moved by the end of July. This has been tough with work because we are not able to spend much quality time with the kids. But it will be WELL worth it in the end!

Oh and just for everyone's information, Baby Elizabeth (Ellie) is home! Just found out she has been home since the 6th and doing great! Congrats to the Potters! 

Not to mention all our other heart families who (knock on wood...) are doing GREAT too! 

We have a Herma Heart Picnic coming up in August and we can't wait to bring the kids down to Milwaukee Zoo and see all our friends!

Here are some pics I found (I will have more when I find my missing camera ☺)

Dylan playing in a box at Uncle Chris and Aunt Brandi's

new house in Bassett, NE

Lilly just chillin' first time in NE

also Nebraska

 

Lilly and Boone in Nebraska

Dylan's 1st Head Trauma (yes that is blood running down his face and he is smiling)

my niece Julie, nephew Derek, Dylan, Me and Lilly

Visiting My brother Jason and his girlfriend Sara in Minnesota

Dylan taking a cat nap

Lilly with Daddy's hat waiting for her check up

My hunter during hunting season 2009

Shoot them deer!

YEAH LILLY

We had her Cardiologist appointment yesterday, which went wonderful! We did not do an ECHO or blood work, just had to take her clothes off for a weight! Dr. Dietz thinks she is doing wonderful!!! She told us to not worry about her weight and let her be a kid! Over all a great appointment

What's new!

There has been so much going on this past month, I thought I would update everyone. Dylan and Lilly are at a sitter's while I am at work and they are loving every minute of it. They have two other kids, sand box, pool, you name it....plus, other kids' toys are ALWAYS better than yours (even if you have the same one at home). Lilly has taken 'steps' one here, one there! Mostly when she thinks you're not looking☺. Her speech is still behind so starting the end of the month a speech therapist is coming out (one who works with Speeking, not eating (like the one she sees now). She can say about three or four words, Mama, Daddy, Yeah, and the occational word we make out for something.
Lilly's weight is still a concern, we are still struggling for the 16 pound mark. Her intake orally has dropped drastically and her overnight feeds are slowing as well. We can not seem to keep it all down! We have a cardiologist appointment in Chippewa Falls tomorrow to try to dig a little deeper into the problem. An ECHO is scheduled, if they can not get a good one, we will go to Marshfield for sedation. There has been talk also of an Endocrine study (hormone study) I have done some research and this sound like it could be an issue, but we will have to do the tests to know for sure.
Tuesday, is Lilly's Gastric doctor. All should go well here, I LOVE the new Mini one button!!
Other than that, Today is Me and Paul's 5 year Anniversary and we are going strong! My job is great! I am enjoying my kids more and get time to play with them....actually play, I use to WATCH them play, now I can be part of the fun.
Please pray for our heart families, the one's who need it and also the one's who do not. Count your blessings daily and thank God for the greatness in your life!

No Bad News!

Sorry about the updates, or lack there of. I have starting working and am on my 3rd week and loving every minute of it! The kids are going to a family friends, who is by far cheaper than day care! Lilly is doing well, we have a GI appointment on the 18th and a Cardiologists on the 22nd. We may need to do a Eindocrin study to find out why our weight gain is so slow. She is taking about 16 oz during the day of Pediasure and 500-600 cc's though g-tube at night.
Sorry to make this so short, but I am at work....Computer at home is down!!
We thank all of our loved ones for their support, knowing that each day is a blessing!