Today I am starting this blog because our caringbridge site can only contain so much, with every day the space I have there gets smaller! Here I hope to include not only Lilly's triumphs and struggles, but the entire families as well.
Let me start off with what happened yesterday.... yes, I will be writing on caringbridge for a while longer but will fully transfer here!
Oh yeah, back on the topic, I received a call that Lilly was going in for another upper GI....which was done yesterday at two PM. They found out that Lilly may have a ulcer which is causing these eating issues. The doctors are not sure yet if it is true or not because she is not in too much pain so they will wait and see.
We set up this blog to update about Lillyann's struggles and triumphs with Hypoplastic Left Heart Syndrome. Born March 24, 2009 ~ 1st heart surgery (Norwood) April 1, 2009 ~ 2nd heart surgery (Glenn) July 10, 2009~ G-tube placement September 22, 2009 ... 3rd heart surgey (Fontan) Sept. 11, 2012.
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