Lilly's home health nurse, Lori, came out today and got a weight on her.... she is down to 5.34 kilos (11.7 lbs) and they are debating if we should increase her calories or her volume. I also expained that she has been more irritable, Lori doesn't know if it is the G-tube or her teething.
Dylan is drivng us up the walls "helping" us. I know that is what he intends to do, but he is making more work for me. Paul finally is feeling better and just hs a cough now.
Tankyou for the support...
Naomi
We set up this blog to update about Lillyann's struggles and triumphs with Hypoplastic Left Heart Syndrome. Born March 24, 2009 ~ 1st heart surgery (Norwood) April 1, 2009 ~ 2nd heart surgery (Glenn) July 10, 2009~ G-tube placement September 22, 2009 ... 3rd heart surgey (Fontan) Sept. 11, 2012.
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