Lilly gained weight!! Only 10grams hey, it's a start. I started yesterday doing a feed as she wants thing and whatever she doesn't take by mouth put over the pump. doing it this way gets about one extra feed in.... at this point....whatever keeps us away from CHW (no offence).
Lilly is doing better with her head control as well as eating her feet... :) She still refuses tummy time, but the therapist is coming out tomorrow to check things out.
We set up this blog to update about Lillyann's struggles and triumphs with Hypoplastic Left Heart Syndrome. Born March 24, 2009 ~ 1st heart surgery (Norwood) April 1, 2009 ~ 2nd heart surgery (Glenn) July 10, 2009~ G-tube placement September 22, 2009 ... 3rd heart surgey (Fontan) Sept. 11, 2012.
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