How come every time it is crummy out I need to do something with Lilly?!! Lilly went in to the doctor for a rash, which turned out to be eczema, and cam out with two shots. Slowly she is getting immunized!!YEAH! She is under weight so we are going to up her volume to 75 ccs per feed (2.5 oz ) to get her weight up.
She is very gassy and Ifind myself venting her g-tube more often now than I did last week. Her doc told me to try Mylicon drops. Well see! Itherweis, things are going good! She can't get H1N1 aain this year!! still cute
We set up this blog to update about Lillyann's struggles and triumphs with Hypoplastic Left Heart Syndrome. Born March 24, 2009 ~ 1st heart surgery (Norwood) April 1, 2009 ~ 2nd heart surgery (Glenn) July 10, 2009~ G-tube placement September 22, 2009 ... 3rd heart surgey (Fontan) Sept. 11, 2012.
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