Well, the day has come and Lilly was taken back to the OR at 11am. The last update that we got was that they were still preparing her for surgery and 'opening her up'.
Last night was eventful! She did her MRI and we found that her Left pulmanary artery is smaller than normal and will be added to the "TO DO" list for Dr. Tweddell. She woke up afterwards and wanted peanut better toast and coffee at 6pm and again at 10pm. It is amazing how funny everyone thinks that is because that is just one of her strange eatting habits we have handled for the last two years.
She made her Courage Bead necklace provided by Wings of Endowment, and had a blast placing each one on. They are beautiful and a great keepsake for her to see all that sh has accomplished.
I made that mistake to tell Lilly taht all of her nurses were her friends and were going to stay up with her at night and play. Needless to say, she took it seriously and was up until around 11pm.
She in some what crabby but can you blame her!?
I will update as soon as I hear more news. Prayers be with her today!
We set up this blog to update about Lillyann's struggles and triumphs with Hypoplastic Left Heart Syndrome. Born March 24, 2009 ~ 1st heart surgery (Norwood) April 1, 2009 ~ 2nd heart surgery (Glenn) July 10, 2009~ G-tube placement September 22, 2009 ... 3rd heart surgey (Fontan) Sept. 11, 2012.
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