As of 6:30 pm Lillyann is out of surgery. She has been doing great and is back in her room on W3. We are in 323, which is one of our friends old rooms. tonight has been hard for all of us as we are trying to make her comfortable.
As usual, the sedation wears off quicker than expected and she had already tried to sit up on her way to her room after surgery. The doctors and nurses are being very helpful with monitoring her every mumble. We have Melissa tonight and she has not left the room since our return.
Paul is relating to her as he was right where she is about nine months ago. Which makes it harder on him to relive all of his pain as he sees it in her.
It is difficult to tell your child "No" when all she wants is a drink of water and she can't. Talk about heart breaking.
Any who, Dr. Tweddell thinks that everything looks good and said that, as usual, the next couple nights will be hard.
She is on seven medications and some Platelets for now and hopefully soon we will be back down to our two (wishful thinking).
We set up this blog to update about Lillyann's struggles and triumphs with Hypoplastic Left Heart Syndrome. Born March 24, 2009 ~ 1st heart surgery (Norwood) April 1, 2009 ~ 2nd heart surgery (Glenn) July 10, 2009~ G-tube placement September 22, 2009 ... 3rd heart surgey (Fontan) Sept. 11, 2012.
We love you baby girl!! Can't wait for you to come home! Be strong baby girl, you are tough! We love you sooo soooo much!! Muah hugs and Kisses from us at home!! <3 <3 <3
ReplyDeleteGlad to hear it went well. Please keep us posted as we are all praying for you. Hang in there for the next couple of days as they will seem more like weeks than days.
ReplyDeleteThe Smiths
Glad to hear the surgury went well....we are thinking of everyone, our hearts and prayers are with you. Sending love and strenth. Love Kim and Dave
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