Fontan Day 8

All things are going as expected for Lilly. Yesterday we had her up and walking for most of the day. By mid-afternoon her stats had dropped and we needed to go back on oxygen through the night. Last might we also tried Roxiset (kind of like Tylenol with Codeine) to help Lilly sleep and it worked wonderful! She finally got a full night sleep and woke up in a happy, cheerful mood.
On rounds we decided that Lilly needed a day off. She did not need to do an x-ray or and blood draws today (YAY). We took her off oxygen again and the goal was to keep her off for the day. PT came and we walked up half a flight of stairs and down to the cafeteria for lunch before she started to get tired. After a nap her blood pressure seemed to drop a little so we limited walking around. Dr. Sadock (Cardiologist on the floor) thinks that we will need to adjust her Lasix tomorrow when we look at her x-ray.
If we can keep her off the oxygen and fix her meds, they said that possibly Friday we may be able to go H (you never say the word until you walk out of the hospital, not even the doctors say it). We may leave with oxygen, just as a precaution if her stats don't stay up tonight.
Other than that we are giving her the first shower she has had in over a week later tonight.
P.S. It has been a crazy week both here and back home and we may need some extra prayers sent out. I met a beautiful 2 year old boy this morning named Jake who was diagnosed in July with Cancer. He is here getting a chemo treatment and got a bladder infection as well. Please pray for him and his parents for the strength and hope. Also my grandmother Donna, who has just gone into remission a few weeks ago fell. We found out that she has a hairline fracture on her spine. Please pray for a full recovery. Thank you to all who pray for us as well!