Wonderful day!

Just wanted to fill everyone in about Lilly's appointment today. When we got there (in the snow storm) she was given a drug a little stronger than Benadryl called chloral hydrate. This medication was just what we needed! It put her to sleep and gave the rest of us in the room comic relief. Lilly was in a "drunken state" and could not stand or sit and giggled a lot! I cried laughing so hard!
Under sedation, her O2 stats stayed in the low 90's (awesome) and her heart rate was normal. We got a wonderful Echo which showed us that she will be able to wait until a later time to do her final Fontan surgery. She is doing so well that starting next week we are lowing her Spironlactone to once a day, within the next month or so this will be taken off altogether. Within a few months, at her next Cardiologist appointment, we will also take her off of the Captopril and onto a medication that can be taken once per day. This means that she will be on THREE medications and it will only need to be given once a day!! Yay! Lilly has made so much progress with her heart that Paul and I joke that she is "fixing herself".

Oh yeah, her G-tube is now just a hole that will close by it self within the next few weeks. We are placing Tums with gauze over the hole where the tube had been to decrease the acid that touches her skin.

After the appointment, we ate lunch, which she scarfed down, and headed home. Lilly slept all the way home and was still woozy when we got home.

Tomorrow Dylan, Lilly and I get to go see the eye doctor here locally. I am hoping that the kids sleep in so I can get some house work done and still have at least a few hours of sleep. Thank you all for the prayers and support because they have been answered yet again. I will talk to you soon with anything else that may pop up!