Lilly has had her G-tube out for 4 weeks now. They told me that it should be fully healed by now, however, it is not. Called and they want me to drive to Marshfield twice just to see if they WANT to put stitches in. NO not gonna happen! Talkin' with her pediatrician on Friday for her 24 month check up to see if we have other options.
It seemed like because Dr. Fish did not want to have the tube removed, now he doesn't really care. Yeah, he can take his job and shove it!
I will let you know how the appointment goes on Friday.
We set up this blog to update about Lillyann's struggles and triumphs with Hypoplastic Left Heart Syndrome. Born March 24, 2009 ~ 1st heart surgery (Norwood) April 1, 2009 ~ 2nd heart surgery (Glenn) July 10, 2009~ G-tube placement September 22, 2009 ... 3rd heart surgey (Fontan) Sept. 11, 2012.
Good luck with Lilly's appointment today. HOpe you get some good news :)
ReplyDeleteCacee