Saturday, October 2, 2010

Some stuff, different day!

Lilly has been doing really good! Eating more and more every day. Ramen noodles are her favorite...I must say! It is an amazing feeling knowing that we have not been admitted for almost a whole year.(knock on wood!) Her GI doc seems to think that she is underweight, well... she is, very underweight! I am sticking to my guns, "NO G-Tube!" and as much as he hates it, he can't deny me that.

Her O2 and heart rate has been good. 85% and normal heart rate. Weight...like I said she is really underweight, she was at 6.8 kilos (14.5 lbs) and for being 18 months old is in the bottom 1%. Oh well, what can they expect! We also got off her diretic (furosimide) completely. So far so good.

We are now on 1.5 calorie Pediasure and have some recipies that actually sound kinda tasty. We will give those a try starting next week, along with the Diatary journal we need to keep. We will see a Diatician every two weeks until we get back on track.

With cold and Fllu season upon us, of course Lilly and the entire family for that matter come down with it. Dyaln's lasted 48 hours but the rest of us had been stuffed up and runny nose for the last week. Lilly seems to be tolorating it fairly well.

She has not figured out how to climb! Yep, I am in for it now! Window cills, coffee table (kitchen table for that matter) and everthing else to try to fall off of!

Thinking of our heart friends and familys always! God Bless and take care this Flu season!

1 comment:

  1. Go get em Lilly! It is funny you mentioned Ramen Noodles. I mentioned to M the other day that we should let Caden try them. He loves ravioli and other noodles so why not right? I am happy to see her Sats are good. I wish we could say the same about Caden but he has been sick lately so we feel we are not getting an accurate reading. We will see. Glad to check in and see the family is doing well.
    Maybe we will see you this saturday?

    D

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