First steps!

It is amazing how seasons fly by and how fast kids grow! Yesterday night, after I had gotten home from work, Lilly stood up in the center of the Living room and took a step. As she was taking that step, she started to loose her balance and took two more quick steps before falling over!

 Cardiologist appointments are going good as well as GI appointments. We are starting to wean Lilly off of her Metroclopromide (appetite medication) and see how she does. One dose per week is what they told us to do; so far so good. Dr. Fish, her GI doc, is thinking by our appointment in October, we may need to move up a size on her G-tube. Dr. Dietz, her cardiologist, keeps reassuring us to let her be a kid! Not to worry about her weight and know that she is not far behind normal kids her age.

We took the kids to the Lake for the first time this summer. Dylan is far braver than we give him credit for....he was walking out to the deep end and I kept yelling at him not to go any farther, but he is 3 and a boy... he kept right on going out to his neck before he stopped! Lilly is just as brave. Trying to crawl in chest deep water and eating as much sand as she could before we could stop her, just wasn't working all that great! They were both mad when we had to leave.

We have been working on our "new" house and will be moved by the end of July. This has been tough with work because we are not able to spend much quality time with the kids. But it will be WELL worth it in the end!

Oh and just for everyone's information, Baby Elizabeth (Ellie) is home! Just found out she has been home since the 6th and doing great! Congrats to the Potters! 

Not to mention all our other heart families who (knock on wood...) are doing GREAT too! 

We have a Herma Heart Picnic coming up in August and we can't wait to bring the kids down to Milwaukee Zoo and see all our friends!

Here are some pics I found (I will have more when I find my missing camera ☺)

Dylan playing in a box at Uncle Chris and Aunt Brandi's

new house in Bassett, NE

Lilly just chillin' first time in NE

also Nebraska

 

Lilly and Boone in Nebraska

Dylan's 1st Head Trauma (yes that is blood running down his face and he is smiling)

my niece Julie, nephew Derek, Dylan, Me and Lilly

Visiting My brother Jason and his girlfriend Sara in Minnesota

Dylan taking a cat nap

Lilly with Daddy's hat waiting for her check up

My hunter during hunting season 2009

Shoot them deer!