Yes everyone, Lilly was admitted to CHW on her December 31st Appointment. Even though we had a good feeling that it may happen, I was VERY emotional the first night at the Rhonald Mc Donald House. To me it almost seemed as if the last 2 1/2 months were a dream; it never happened. Paul and I sat last night and looked up at the beautiful Christmas tree at RMH and couldn't believe that we were back.
The appointment with Dr. Michele Frommelt, Herma Heart's Cardiologist, went very well. Lilly had good head control and was meeting the milestones she had been given. The one thing that stood out ( has ALWAYS stood out) was her weight! According to their discharge records, Lilly was at 5.36 kilos and at the visit, she was 5.16....yeah I know. Oh course they played the whole "It would be in the best interests of her to stay" thing, and we agreed.
The docs here haven't been to thrilled with my ultimatum of them having through this weekend to either find out how to get her to gain weight or find something with her heart. We made it clear that if they do not find something wrong with her heart we will admit her to a local hospital. Unless they find a solution with her weight, then we'll just go home!!
Paul and I are trying to make the nost of our visit by visiting with Elie Potter's family, Gilda and Dave as well as going out with Andy Wahl, Medical transport, and his wife Kathy. Andy has been the one to pick up Lilly both times she was flighted and has needed to come in as a expert for certian reasons to her room, needless to say, we have become good friends and is a person that I can trust (right up there with Nancy Ghanayem).
lilly is driving the nurses crazy, she has been use to being up and walking or being picked on by her brother.... she does NOT want to just lie there all day. It's kinda cute!! She is already gaining weight and is upto 5.36 kilo (11.8 lbs) again. She is on our way home again!!
P.S.I just found out that little Ash Giles earned his wings after Christmas. His service is this Sunday please pass along some extra prayers to the Giles family!!
We set up this blog to update about Lillyann's struggles and triumphs with Hypoplastic Left Heart Syndrome. Born March 24, 2009 ~ 1st heart surgery (Norwood) April 1, 2009 ~ 2nd heart surgery (Glenn) July 10, 2009~ G-tube placement September 22, 2009 ... 3rd heart surgey (Fontan) Sept. 11, 2012.
Dear Gesler family ~ Your world has just turned upside down again however you both continue to be the rock for Lillyann. I know you both are sad and scared of all the "what if's" but remember it is out of our control. Turn it over to God and remember she is in good hands and loved so, so much. We love you and are praying like crazy!!!
ReplyDeleteThe Smith family....